Il sonrisa de Rita

“Il Sonrisa de Rita” is an annual event organized in Afragola (Napoli, Italy) by the Onlus I.S.I. association.

This day is dedicated to Rita’s memory, a young italian girl who was suffering from the severe form of HFS. During this day, families, parents and kids, are invited to play, smile, laugh and meet each other. All the collected funds are donated to the Onlus I.S.I. association, which supports medical and biochemical research related to the HFS disease.

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May 9, 2013
The Hyalinosis Fibromatosis Syndrome website is finally complete and online!
Jan 22, 2013

Next event

Save the date!
HFS meeting 2013
October 7,8 and 9 2013 in Lausanne, Switzerland